Sunday, June 21, 2009

HAPPY Fathers day

What a week its been.

We visited friends yesterday, a long day indeed, but much needed, my head and leg did NOT appreciate it though.

Then today, we went to my inlaws.
when we got home I took my vicodin and got ready for a nap, never got it, and Lauren threw a KING SIZE tantrum, but its over and I am tired...

I can't wait til school restarts for her in July, she tested into 3rd grade in all but Math so she is doing that this summer so we can start full 3rd grade in September.

Sunday, June 14, 2009

Feeling MUCH MUCH worse today

Ok, I knew working out even with something as simple as a video game would have repricussions, but WOAH, My head has been KILLING me all day, I did play more today though even though I was hurting, I felt it was best to try anyhow, I am looking forward to other games in hopes that I can see some results....even the limits of my disability, being active even a little has benefits.

My pain level on the 10 scale is about a 12 and NOTHING has penetrated it today not even sleep...I will give it a few more days before I call and ask for something to kill it....I know there isn't much they can give me since the pain meds do not help much if any.

I will always work through the pain til I can't take it anymore....tomorrow we find out whats up with Chris's unemployment and that will make a difference in what we do next.

I NEED him to get a job even if its part time... because right now we are over the cap for SSI, and I still can't get insurance coverage.
Grr. At least they will cover the back stuff for the last 3 months when I was in the hospital, I have to call the hospitals and my social worker, PRAYING like all get out that I have a new worker, the last one was not very good.

Saturday, June 13, 2009

We Got a Wii

Ok, I feel like crap, but I worked hard today.
I got a Wii today and played hard....remember I can't be on my feet for long periods of time due to pain, I Bowled a game, then I played a game of Tennis, then I did the stamina challenge (I came out at a 54 year old, not bad when you figure I am on disability from being sick and I actually did this without breaking inbetween times)

My head, neck, and Shoulders hurt REALLY bad, plus I am tired.

Friday, June 12, 2009

Not sleeping well

Ok, I have had it up past my eyeballs, which I wish were closed right now.

I was having issues with the headaches, but now I am on meds that are supposed to help me sleep...the problem? Well they get caught in my throat as I try to swallow them...we are not talking horse pills either we are talking oh 1mg pills, little itty bitty things.

I am SO frustrated.

My neck and shoulders are killing me too, its like my head is too heavy to sit on my neck...
I am afraid to cry, because while emotionally I am ready to...well, LOL, it hurts worse when I cry. I want to close my eyes and my eyelids hurt...I am so tired of fighting this, I am praying that Chris gets a part time job so that I can get SSI, oh they will pay my medical bills for April when I went to the ER twice, which is SO cool...but I desparately need insurance and to seek another surgeons opinion.

If I get insurance, I will ask Dr. Turner for a referral in October...I will wait that long, I think I can handle the wait...but I will have to mention the swallowing issues, it seems like more and more food is getting stuck too...but Chiari while it has swallowing issues, this almost seems like a gag reflex in overdrive, but maybe I am overthinking things so I don't put myself in a panic noticing yet another symptom related to Chiari, the bladder issues totally freaked me out....Dizziness and headaches I have had for so long they dont worry me, but my arm and leg numbness made sense...I don't need to fear, but at the same time, if its progressing...well, I don't want anything permanent to happen.

Tired, goin to try my meds and get some sleep, have to go to SSA tomorrow to drop off paperwork, then going to Thrift store to get Lauren clothes, I HOPE, then I am going to come home, go drop off paperwork for MI Works, and go grocery shopping, I hope I can stay awake through the hockey game.

Sunday, June 7, 2009

Stress and dissappointment

Well, I had my neuro follow up this past week.

I was not prepared for what he had to say "my hands are tied"

I will be seeing a Bariatric Surgeon in February when medicare kicks in along with an see if we cant figure out WHY I can't lose weight and hope that does SOMETHING, at the very least it should reverse the Diabetes.

I am feeling more and more run down. Daily headaches, and I can't count the number of other things going on right now....

God is provident though and he will work this out, even though at this point I don't see how.