Saturday, November 29, 2008

The Battle of Wills that I am not sure WHO won

Today was a REALLY bad day.

We had an okay Thanksgiving, We had dinner at Chris's Dad's on Wednesday than we had our Thanksgiving here Thursday, Friday we were back at the inlaws for a long boring day of Chris learning tax stuff.

Then comes Friday night, Lauren spent the night in our room, she was overtired and clingy so we okayed it. BIG mistake....All day today has been a battle, from the MOMENT she woke up til the moment she went to bed.

Normally in a battle of wills of this magnitude, someone gives up, usually her. Today having daddy home it was about a thousand times worse than usual, and my oh my am I miserable.

My head hurts, my neck hurts, my leg hurts and my brain is totally fried.

She eventually decided it was in her best interest to behave but it took her ALL day to learn.

All in all, today was NOT a good day.

Monday, November 24, 2008

so tired

Things are going ok here, but I am totally exhausted and have been for about two days now.

Todays has been a long day, my head has hurt all day, but God is good, we went to church yesterday and I really REALLY REALLY like this church, its Amazing, I haven't liked a church like this one since I started at Evangel Temple.

Its open and honest and I have met families there that actually do things we do. I love how Lauren interacts with the other children and how at home we seem to feel while there.

Its not even 9pm and I think I am going to take my meds and hit the hay, I am not going to make it til 9.
Good Night

Wednesday, November 19, 2008

Quickie Update

Things are going here, its gotten COLD, and my body is rebelling something horrible.

Stress is running high as things KEEP going wrong.

God is still in control regardless of what happens.

Monday, November 17, 2008

That wasn't half as bad as I expected it to be

Today was the Rheumatology appointment, I was nervous, and it showed, my blood pressure is normally 136/80 or so, Today, 196/72 a bit high, she laughed when I told her it was nerves.

She doesn't seem to think its Lupus but rather Neuro-Muscular. She is running a bunch of blood work anyhow, I didn't ask what, it just makes me think too much and worry more.

She gave me a steroid shot to help decrease the inflammation and tenderness in the office, how fun is that. Woo Hoo, blech, yuck, lol. Then she wrote out a couple scripts, one for a muscle relaxant and the other an NSAID that is supposed to work a bit differently than the others I have tried.

She did mention that quite a few muscles are really tender not just the ones we thought about, she said there was quite a bit of tenderness in the chest muscles as well as back, neck, thigh, shoulders, and leg.

I go back on December 9th for the follow up.

As for how I have been feeling, tired about sums it up, all I want to do is sleep. I am in lots of pain, but all I want to do is sleep and sleep and sleep, and NO, I am not depressed, I am just exhausted.
I do things around the house, I teach Lauren, we play, but mostly I rest, by body is draining me of all energy.

Wednesday, November 12, 2008

Bits and Bytes

I am still puttering about getting things done incredibly slowly.

My brain hurts to even think, and once again, I seem to have slept or rested way more than I feel I should need in a given day.

Lauren worked on Nutritious November worksheets and is going to be working on how to find healthier choices among what we really want. Lucky Charms isn't a healthy choice regardless of how yummy they taste. has some really cool links for preschoolers that we printed off to help us choose the perfect amounts per meal. Since I will be working my way down to her serving size, it should be pretty good for both of us.

Friday I have my appointment with my Michigan Works counselor, I need to call the transcript lady tomorrow to make sure that everything gets in the system (or I will have to go back again)
Yesterday I called and my blood work was being faxed over to the rheumatologist, that appointment is on Monday and I am VERY nervous at this point. Maybe if I felt a bit better I wouldn't be half as anxious.

My thoughts aren't making much sense right now so I better stop writing before I scramble something important.

Good Night

Tuesday, November 11, 2008

Miserable but functioning

Well, I am determined not to stop functioning despite feeling as bad as I do.
I am sleeping more and resting more but still aiming to get SOMETHING done every day. Its a long road when you don't know what's ahead.

My appointment with the Rheumatologist is in SIX days, its been a long 7 weeks to get here.

This morning I registered for classes at the local community college. Applied Math for Medical Assistants, Business Communications, Human Anatomy and Physiology (hopefully) and Medical Terminology.

This afternoon we are doing school and probably some chores. My goal is to work in bits since I can't seem to manage bites at this point.

My head is getting to the point where I am ready to request a spinal tap or a new medicine...and I am just tired of feeling lousy, and Chris hates his job which isn't helping, he is always angry and stressed out. Grumble

Wednesday, November 5, 2008

My Aching Me

I would love to say that I feel really good about things, but right now I have been in a lot of pain for two days.
Voting turned out to be long lines even in the morning and I should have gone absentee since by the time we were done with all of our Tuesday activities I was in SOOOO much pain. I will live, but I am sore.

I can't even isolate what hurts, but today Lauren took care of me, did her school and was a Huge help. I am so glad we home school, on days like today, there is no way I could handle her being in school...I couldn't get her to a bus, or back off. Days like today, she takes care of me, and learns....She learns compassion and how to care for others, she learns how to be self sufficient, and she learns how to make sure that she stays OUT of trouble.

Sunday, November 2, 2008

Today we Visited a New Church

I didn't want to change churches, but the drive has just gotten to be too much to do it when there are churches around here that share my beliefs.

We had visited one, and while I felt welcomed, it didn't feel like home.
Today we visited another, a little closer, and it was just amazing.
I haven't felt that welcomed since I was in the church we were at before we moved.
They have children...and they are mostly HOME SCHOOLED an added plus.
They have an adult and children's Sunday School, something I find important.

I was just so amazed to actually find a potential home less than 3 miles away. There are no lights between my home and the is a straight shot down M-19...I will go throughout the months of November and December and make a final decision if its home in January.