Monday, March 28, 2011


OK, I am officially exasperated. My head is MEAN!!

I Figured I would get a few good days from my nerve block, uhm, less than 2, but I didn't have high hopes of that working…my pressure is obviously high though because the last two days my vision has been blurring and I have had to have my screen magnified to READ. Even then sometimes it would blur out.

My nausea has been quite a bit worse as well. Of course I am nearly out of BOTH the zofran AND the reglan the two meds that helped with my nausea.

I have been keeping myself busy working on the IH prayer list with Brooke, on Facebook, this gives me great joy, I love praying for the people as I do the list, and it really gives me something to look forward to doing. Its very important to me, and I am so glad she asked me to be a part of it.

Today I worked hard around the house, I folded 4 baskets of laundry, washed a load of dishes and made dinner, for me that is more than I ever get done, and my am I paying for it, my whole body is shaking. I finished almost 3 hours ago and my body is still not happy with me. I will be fine, but it's amazing how unhappy a weak body can be.

Saturday, March 26, 2011

Well what do I know???

Is it sad to say the answer is NOT MUCH?

My last post was before I saw Dr. McIntosh my surgeon who took out my GallBladder…well, He is Not sure what is causing my nausea, I see him again April 18th We will decide what to do based off of if the nausea has improved or not by then…so far, lets just say, it has NOT.

He however decided that he would get hurt, so any of my friends who DO read my blog can keep him in your prayers, and all of his patients for patience, because they will need it, he broke his ankle and will be out of the OR for a minimum of the remainder of March and ALL of April to allow him healing time, he has pins in his ankle and everything. Poor guy is using a knee scooter to get around, its not easy on him and I am sure its not going to be easy to get back to doing his job the way he is USED to doing it either. This is not his Ideal way of doing things. He is still amazing and I feel truly blessed that I was referred to him.

On Tuesday…I saw Dr. Rossi, that appointment lasted over 45 minutes. Lets just say I walked out with a follow up in June, a script for an EEG, she also wants to do an ambulatory EEG if the 1hour one at the office does not show anything, upped Amitriptilyne and A REFERRAL to University of Michigan Headache pain management Center Dr. Cooper, AHHHH, I am a cross between Nervous and excited.

On one hand, seeing Dr. Cooper means I will be seeing one of the BEST in Michigan for headaches, on the Other, it means, she can NOT work with getting my head under control. She also did an Occipital Nerve Block to try to work on the Nerve pain in the back of my neck, it took about 18 hours to kick in, and lasted about 18 hours, but it did actually knock my pain down about 40% for that 18 hours, in my neck, so the two shots were worth it. Not comfortable or fun, but when you have had zero relief at all in weeks and you keep having to re-evaluate where TEN is, its really hard.

I love her to pieces though because she understands that. She gets me, she knows I am her most complicated patient with IH, and its ok…she is going to learn how to deal with this, and be able to know what to do the next time it comes around.

Saturday, March 12, 2011

When is enough enough?

Well let me see, in the last what 2 weeks since my post we have had a TON of stuff happen.

Chris officially did drop out of the Michigan Works work first program in favor of actually LOOKING for a job that fits his schedule (not to mention the price of gas hit $3.57 a gallon, so we cannot afford for him to be out searching for jobs in person…especially when they tell you go apply online anyhow)

We are applying for subsidized housing, it's not going to be comfortable, it will be small but we will do what it takes to make this WORK for us. Right now it is more important to be together as a family than to worry about space issues.

I had the Implanon placed on March 1st, my arm is still bruised and a bit sore, I also had another injection for the plantar fasciitis this is the second one, he used a stronger steroid this time, its 2 weeks and it still hurts, but not near as bad and it took close to a week or so before it started bothering me again, his next attempt will be with a cold laser, whatever that means.

On March 2nd, I had my gallbladder out, I had NO COMPLICATIONS with the surgery itself, BUT, I did have issues with pain management and coming out of anesthesia, and had to stay overnight because my body refused to cooperate

When I walked the halls both the night of surgery and the 3 tries on Thursday I had massive issues with dizziness to the point where my telemetry unit set off the monitors and nurses were called, my oxygen would drop and I was having a REALLY hard time.

I am still getting the bad dizzy spells, and now my headaches are totally and completely out of control as well.

I see Dr. McIntosh on Thursday next week and am hoping to find out if the nausea I am still having is due to the gallbladder or something else.

I know he won't have answers for my head. Dr. Rossi, who I see on the 22nd will have to deal with that. But, I have hit my break point, I cant handle any more right now.