My pressure is HIGH, and I know it. While its not high enough to put me in the hospital, I am counting down the days til my neurologist appointment hoping I can make it without calling and asking for a spinal tap early.
Unfortunately I do not even know if he will approve a spinal tap with the chiari so it will probably take two phone calls to get the tap even ordered. I will give it another two weeks (or less if I feel really bad) and I will call the neurosurgeon back, maybe he will order it from the DMC and I won't have to worry about having it at one of the two hospitals I do not really trust at this time.
I so wish I knew specifically which problem was causing this so I could fix it or at the very least I could know what the next step is.
I feel like I am going crazy.
I m so glad we are working on getting me back in school because I think I need the distraction to help me make it through this mess. I am so worn out and just physically and mentally drained from this nonsense.