Yesterday, in the mail, I received a report that was sent to my neurologist from the neurosurgeon he sent me to.
I sat down and cried, while he told me about the chiari, I didn't realize he thinks its the main cause of my problems and not the PTC.
I read and re-read the report. I am a complicated case and he feels I will probably end up needing the Posterior Fossa Decompression.
So, I went and looked up a side by side comparison of the symptoms of the two different diseases. Ugh, he is likely right, from the get go, at least a few years ago when the original shunt was put in, this has likely been more Chiari than PTC.
See the symptoms are VERY similar, unfortunately, the only one the shunt really relieved was the headaches. I still had a good portion of the symptoms that I had just figured were a side effect from all of the meds I was on to keep the pressure in check, or the result of the stress of getting sick. Those things were all livable until the headaches came back.
The Chiari though, has a few that are not direct PTC symptoms, and those are actually the ones I was having the biggest issue with over the last two years.
Aside from the headaches, I had had numerous times where I needed to hold a wall to walk across a room from dizziness and I have had the worst brain fog in a LONG time, I screw up even simple thoughts now, sometimes having to say them 3-4 times before I get it out right. I have also had numerous issues with hearing troubles, those are not ptc but rather Chiari issues.
God will really need to give me some serious strength for me to get through all of this this time around.